Life Updates & Ramblings

nlifeupdate

As most of you know we got hit pretty good here in the Myrtle Beach SC area from Hurricane Matthew.  Being without electricity for four days sure gave me a real good appreciation for light. The days weren’t so bad but it was when that sun would go down and everything was absolutely pitch black that by the third night it was seriously starting to get to my brain. We had some damage to our home but nothing too serious and I believe we are very blessed. 

The river near my home is and has been flooding all week long. There are towns in my county that are and have completely disappeared because they are totally underwater.. Here’s some photos..

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So when you I look at these photos and I think about everything that has been lost I feel doubly blessed that we had some minor damage that we have insurance for. 

My husbands feet and ankles began to swell a month ago after being put on yet another statin to try. These are drugs for lowering cholesterol if you didn’t know that. He’s had trouble in the past few months with this reaction to other statins but they wanted to try one more. This time it was Crestor and it’s been pure hell since. I’ve have since been learning a lot about this class of drugs and they are killers. Back to my husband. His cardiologist put him on water pills last week and they have begun to help and I can finally see his feet again but that doesn’t answer why the swelling is there to begin with. When his feet swelled the last time, once the statin was removed the fluid went away. This time, it didn’t and it only continued to get worse. 

Friday found us at a medical imaging place to make sure he didn’t have a blood clot in the right leg as the right foot swelled much more than the left and keeps turning red. The radiologist at the ultra sound thought he saw something but wasn’t sure so they sent us straight over to the medical center so the vascular team could look. They said there’s nothing wrong. We are back to the drawing board.

The cardiologist keeps saying it doesn’t have anything to do with his heart which I find completely mind boggling considering the fact that my husbands feet first began to swell a week before his heart attack this past April AND.. the fact that feet and ankle swelling can have everything to do with heart disease ie: blockages. Tomorrow I will make an appointment with our family doctor to have blood work run on his liver and kidneys as he’s on a ton of pills for his back pain (9 back surgeries will do that) plus pills for his heart and I will also request an EKG.. I am not letting this go. I am like a rabid dog when it comes to my husbands health (I wish I were that way with my own) and I am not letting this go until I have a concrete answer. I don’t care how many enemies I make in the process. 

As you can imagine this is taking a deep toll on me. I am so incredibly wear in every way. Physically, emotionally, spiritually.

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My own health has not been good for 26 years and all of this since April I believe, is finally getting to my body. I am sleeping so much that it’s beginning to concern me and the thought of doing the simplest thing like talking to people some days just seems too exhausting to even try. Not to mention that my brain is constantly going at mach speed trying to figure this all out to the point that I can’t concentrate on any one thing for more than five minutes. The fact that I am even able to sit long enough to write this post is amazing in itself.. 

Until next time..

New Sig

 

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Life Updates & Ramblings

nlifeupdate

As most of you know we got hit pretty good here in the Myrtle Beach SC area from Hurricane Matthew.  Being without electricity for four days sure gave me a real good appreciation for light. The days weren’t so bad but it was when that sun would go down and everything was absolutely pitch black that by the third night it was seriously starting to get to my brain. We had some damage to our home but nothing too serious and I believe we are very blessed. 

The river near my home is and has been flooding all week long. There are towns in my county that are and have completely disappeared because they are totally underwater.. Here’s some photos..

14522785_10154555097702716_6266080462509255537_n151007074358-south-carolina-flooding-drone-sanchez-newday-00001420-large-169sumter-county-black-river

So when you I look at these photos and I think about everything that has been lost I feel doubly blessed that we had some minor damage that we have insurance for. 

My husbands feet and ankles began to swell a month ago after being put on yet another statin to try. These are drugs for lowering cholesterol if you didn’t know that. He’s had trouble in the past few months with this reaction to other statins but they wanted to try one more. This time it was Crestor and it’s been pure hell since. I’ve have since been learning a lot about this class of drugs and they are killers. Back to my husband. His cardiologist put him on water pills last week and they have begun to help and I can finally see his feet again but that doesn’t answer why the swelling is there to begin with. When his feet swelled the last time, once the statin was removed the fluid went away. This time, it didn’t and it only continued to get worse. 

Friday found us at a medical imaging place to make sure he didn’t have a blood clot in the right leg as the right foot swelled much more than the left and keeps turning red. The radiologist at the ultra sound thought he saw something but wasn’t sure so they sent us straight over to the medical center so the vascular team could look. They said there’s nothing wrong. We are back to the drawing board.

The cardiologist keeps saying it doesn’t have anything to do with his heart which I find completely mind boggling considering the fact that my husbands feet first began to swell a week before his heart attack this past April AND.. the fact that feet and ankle swelling can have everything to do with heart disease ie: blockages. Tomorrow I will make an appointment with our family doctor to have blood work run on his liver and kidneys as he’s on a ton of pills for his back pain (9 back surgeries will do that) plus pills for his heart and I will also request an EKG.. I am not letting this go. I am like a rabid dog when it comes to my husbands health (I wish I were that way with my own) and I am not letting this go until I have a concrete answer. I don’t care how many enemies I make in the process. 

As you can imagine this is taking a deep toll on me. I am so incredibly wear in every way. Physically, emotionally, spiritually.

matthew-11-28-300x225

My own health has not been good for 26 years and all of this since April I believe, is finally getting to my body. I am sleeping so much that it’s beginning to concern me and the thought of doing the simplest thing like talking to people some days just seems too exhausting to even try. Not to mention that my brain is constantly going at mach speed trying to figure this all out to the point that I can’t concentrate on any one thing for more than five minutes. The fact that I am even able to sit long enough to write this post is amazing in itself.. 

Until next time..

New Sig

 

I’m Feeling It Lately

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There are many days, okay, most days that I try very hard not to complain, not to show how I am feeling and or I blow it off as no big deal but lately, sheeweee, I am having a really hard time with this. 

I am beginning to wonder if the last Twenty Two or Twenty Six years are finally catching up with me. I say take your pick between years because I was originally diagnosed with Lyme Disease in 1990 but it didn’t completely disabled me until 1994 so, take your pick. To me, twenty two, twenty six, it really doesn’t matter. Bottom line is, it’s been a long time. 

The last eight months or so I now suffer daily, excruciating pain like I never had in all my years of chronic illness. Which tells me, either something ‘new’ is going on or the old stuff is getting worse. I haven’t figured it out yet, don’t know if I ever will. 

One of the hardest parts is living in the South none of the doctors here and trust me, I’ve seen plenty of them understand , are not educated in nor do they care to be educated in Lyme disease and it’s associated tick born illnesses. It kind of leaves me hanging on a cliff daily just wondering when I’ll fall over. Not the easiest way to live but, I have faith that God knows what’s in store for me be it good or bad I know He will be with me.

Each day I literally drag myself out of bed and force myself to begin the day with whatever that entails. Usually it’s feeding the five mouths with four paws and then it’s off to the races taking care to see my husband has what he needs and then what my house needs. In typical female fashion I put my own needs last but as of late, I’m not even sure what those needs are anymore. See what I’m saying? My brain fog is so thick that if I were a boat lost at sea in the fog I’d capsize and drown. Not so sure I’m not drowning now but I will continue to do as I try too. Each day I will give my life and my day to the Lord, ask for guidance, ask for the intelligence to recognize his guidance and then follow it and Him. 

New Sig

 

I'm Feeling It Lately

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There are many days, okay, most days that I try very hard not to complain, not to show how I am feeling and or I blow it off as no big deal but lately, sheeweee, I am having a really hard time with this. 

I am beginning to wonder if the last Twenty Two or Twenty Six years are finally catching up with me. I say take your pick between years because I was originally diagnosed with Lyme Disease in 1990 but it didn’t completely disabled me until 1994 so, take your pick. To me, twenty two, twenty six, it really doesn’t matter. Bottom line is, it’s been a long time. 

The last eight months or so I now suffer daily, excruciating pain like I never had in all my years of chronic illness. Which tells me, either something ‘new’ is going on or the old stuff is getting worse. I haven’t figured it out yet, don’t know if I ever will. 

One of the hardest parts is living in the South none of the doctors here and trust me, I’ve seen plenty of them understand , are not educated in nor do they care to be educated in Lyme disease and it’s associated tick born illnesses. It kind of leaves me hanging on a cliff daily just wondering when I’ll fall over. Not the easiest way to live but, I have faith that God knows what’s in store for me be it good or bad I know He will be with me.

Each day I literally drag myself out of bed and force myself to begin the day with whatever that entails. Usually it’s feeding the five mouths with four paws and then it’s off to the races taking care to see my husband has what he needs and then what my house needs. In typical female fashion I put my own needs last but as of late, I’m not even sure what those needs are anymore. See what I’m saying? My brain fog is so thick that if I were a boat lost at sea in the fog I’d capsize and drown. Not so sure I’m not drowning now but I will continue to do as I try too. Each day I will give my life and my day to the Lord, ask for guidance, ask for the intelligence to recognize his guidance and then follow it and Him. 

New Sig

 

It Was Frightening

Gay Pride

A group advocating AIDS research marches down Fifth Avenue during the 14th annual Lesbian and Gay Pride parade in New York, June 27, 1983. This year’s parade is dedicated to victims of the incurable disease AIDS which primarily afflicts homosexual men. (AP Photo/Mario Suriani)

It was the 80’s and I was a teenager. All of eighteen when I learned of AIDS. I know it had been around before that but as a teenager who ran fast with a fast crowd we didn’t exactly pay attention to the news. In 1988 I was working full time for an upscale auto collision shop in New Jersey. More and more AIDS was being brought to the forefront as was the hysteria surrounding it and in all honesty , it was frightening. At the time I didn’t know anyone who had AIDS but that was about to change. 

One day a customer came in who happened to be the daughter of one of our biggest accounts. She had an auto wreck and needed her car fixed she also, had AIDS. Thats when the AIDS fear entered my life. No one in the shop would get in her car to get her insurance information out of it because she had bled in the car and everyone was afraid. I admit, at first I was a bit afraid myself but that night I went home and decided to do some research and learn more and so I did.. 

Next morning I tried in vain to educate everyone in the office and the shop that they had nothing to fear that once “it dries it dies” but my words fell on deaf ears. Finally I got so angry I called every male in the place (I worked with 15 men) a pansy ass and went into the car and got the information myself. Well, you would have thought I was going into an unknown world. They all stared at me like I was insane.. To their surprise. I survived, the car was fixed and me and Doretta (yes that was her name) became friends. 

Fast Forward a few years and I got sick with Lyme Disease. By 1994 I was too sick to work but I was also full of anxiety and frustrated to no end sitting home all the time sick and in pain just staring at the TV. Someone suggested that I should try volunteering to see what I could actually get my body to do. I did just that and I picked a soup kitchen dedicated to AIDS patients at a church about twenty minutes from my home. I went two times a week for about a month when my body decided it had enough.

I will tell you though, those two months were the most rewarding two months of my life. I got to meet these people that others were so afraid of. Turns out with education and compassion there is nothing to be afraid of. I got to see life through their eyes. I remember a woman who would come twice a week on my days and she was very sick. She didn’t have long to live. I would arrive and there she’d be sitting in her chair with her IV pole  usually alone reading a book. We would exchange a smile or two when I served her a meal and finally one day I sat down and we began to talk. I never asked her how she contracted AIDS because it didn’t matter.. She was no different from me except that she was dying faster than I.  I don’t know if I brought anything to the days she had left but she had given me a gift that has lasted these twenty some odd years and will until its my time to leave this earth. She allowed me to know her, to be kind to her and to be a friend to her. I will never forget her or her beautiful smile.

I will be forever grateful for my time in that soup kitchen and if I am ever able to volunteer again  I would do it all over the same way.

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Manic Monday

manic-monday

On Mondays I usually bring you a treasure I’ve found at the Dollar Tree but this Monday fate had other plans.

On Saturday afternoon round about five PM our entire air conditioning unit decided to stop working. When that happens here in the South in the middle of July in the middle of a heat wave it’s panic time. I quickly called a repair man and as fate always seems to have it for me, the compressor is blown and can not be replaced because the unit is so old they don’t even make the part anymore. 

I have spent the weekend in my home sick from the heat as it has been between 83 at night and 90 during the day INSIDE the house.. Outside temps have been ranging the last two weeks here in South Carolina between 97 and 100 with head indexes of 105-1117. Yes, IT IS HOT!..

My only reprieve is that on Sunday morning Lou and our best friend Bill went down to Lowes and purchased a small window air conditioning unit for the bedroom which truly is a God send but, it doesn’t help when you are constantly going into the heat and then back into the cold. Yes, I feel physically awful but I am grateful for the little AC unit in the bedroom. 

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This morning it’s all about scrambling to get the best price on a knew unit, how quickly they can get here and how quickly they can install it. Due to my illnesses I do not do well in the heat. It only takes a few moments and I’m sick. So that is what we are doing at the moment. I hope to bring you a Dollar Tree post next Monday.

Thank you for hanging in there with me!. 

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SLACKER!

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Hi All.. 

I know I know, where have I been?? Well yep, I’ve been slacking.. Guess you could say I’m a slacker these days. I haven’t blogged in a bit, lots going on. Lets see.

Almost three weeks ago I had to go to the emergency room because I woke up with a sinus infection that hit me like a ton of bricks over night. I have chronic sinus issue’s but this one was different and came on so quickly I didn’t even have time to think and the pain? I can’t even explain the pain I was in. So there was that.

About four days later on a Sunday night I ended up rushing my husband to the emergency room. He began coughing about three days after I got sick and by the time Sunday night rolled around he could barely breath and the wheezing he had sounded horrific. It was almost as if he was barely moving any air. So, off we went. After three hours, six nebulizer treatments, antibiotics, steroids and a diagnosis of severe bronchitis we were able to go home. It was three am. You can only imagine how tired we both were the next day. When you have five dogs, life doesn’t stop because you get sick. 

Fast forward 4 days later and I began coughing and the congestion in my head was so thick you’d of thought I had been sniffing concrete. Yep, you guessed it.. I got a version of what the hubby had only not bronchitis. To be honest, the doctors don’t seem to know just what the hell it is. Seems tons of people across the country have it, they think it’s a cross between a cold and the flu yet it isn’t either, antibiotics don’t work on it and I’m told it can last up to six weeks. I am now into week three and feeling a tiny bit better although still coughing but not as much. So I am guessing as are the doctors an others who have this, it’s just something that needs to run its course. Yuck, yuck. 

In the midst of all this my heating unit decided to go kaput and it was a dangerous situation. Long story short, we couldn’t use our heat until it was replaced, $$$$$, because there was a strong possibility my house could have gone on fire. We were staring down at a $4500 to $5000 bill and didn’t have it. Again, long story short, we were VERY blessed, blessed beyond measure, blessed more than we deserve and we now have a new heating unit along with a new air conditioning until because where I live they are all one unit and when one goes you have to replace both. It also didn’t cost us financially anywhere near what we thought. Thank you Lord!

Just in time too because this week and for the foreseeable future we are going to be in the high 70’s low 80’s here in the South. Along with that comes humidity and allergies which have already begun. I guess we aren’t getting a Spring this year we are going to go straight from Winter into Summer. I hate that.

Sorry there aren’t any photos to include with this post. You know all those so called blogging rules. “Make sure you have LOTS of photos. Make sure you have GOOD photos”.. I guess people no longer like to read they just wanna SEE. Lord help us.

I am going to try posting more when time allows and I hope you’ll all stick around..

I wish you all a very blessed Sunday!

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